Priority 8: First Nations-, Inuit- and Métis-governed research and data systems

First Nations, Inuit and Métis-specific, self-determined data and research are key to understanding access, experience and outcomes in cancer care, and identifying community-led efforts and potential solutions for better outcomes.

Actions

  1. Collect First Nations-specific data and set First Nations-specific indicators and targets.
  2. Invest in First Nations research capacity.
  3. Implement First Nations governance of the collection and use of data and research.

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View ways of measuring the indicators

  1. Collect and report on Inuit-specific data.
  2. Determine impact of environmental contamination on Inuit health, specifically cancer risk.

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View ways of measuring the indicators

  1. Collect Métis-specific data and develop Métis-determined indicators and outcomes.
  2. Invest in Métis research capacity.

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View ways of measuring the indicators

Indicator Concepts

What research and data are available on environmental contaminants for your community?
Can First Nations, Inuit and Métis communities, organizations and governments identify citizens in federal, provincial and territorial health and cancer databases in order to measure what matters to them?
How are First Nations, Inuit and Métis communities’ research ethics respected and their voices included throughout the research process?
What First Nations, Inuit and Métis-led cancer research opportunities are there?
Are there meaningful engagement and collaboration processes according to First Nations, Inuit and Métis which advance their self-determined data and research initiatives to improve cancer care outcomes? What do those look like?
What mechanisms are in place to uphold data sovereignty for First Nations, Inuit and Métis Peoples? How are your First Nations, Inuit and Métis research and data governance frameworks, policies or protocols being implemented?

Our Priorities

Priority 1
Decrease the risk of people getting cancer
Priority 2
Diagnose cancer faster, accurately and at an earlier stage
Priority 3
Deliver high-quality care in a sustainable, world-class system
Priority 4
Eliminate barriers to people getting the care they need
Priority 5
Deliver information and supports for people living with cancer, families and caregivers
Priority 6
Culturally appropriate care closer to home
Priority 7
Peoples-specific, self-determined care
Priority 8
First Nations-, Inuit- and Métis-governed research and data systems

Acknowledgements

View the national, provincial and territorial partners who collaborated to support the development of this resource

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