Supplementary data: Canada

Priority 5 Action 3: Support children, adolescents and young adults at key transition points in their unique cancer journeys

Topic: Improving care for adolescents and young adults with cancer
Title of image: Percentage of AYA with cancer who had a specialized care plan pathway, Canada
Caveats/limitations:

  • Data were aggregated at the national level due to small sample sizes.
  • Other gender identity was selected by respondents who self-identified with a gender that was neither female nor male. Urban/rural was selected by respondents themselves (whether they considered themselves living in an urban or rural setting).
  • Only denominators are shown for each category (numerators are not explicitly shown on the graph).
  • A care plan was defined as a document outlining the recommended activities or treatments for the patient’s cancer moving forward.
  • Please note that recruitment for this survey did not target specific groups within the YACC’s community (e.g., by gender, location), but went to the community at large, which has a higher percentage of people identifying as female and living in an urban area. This means that the survey participants may not be representative of the general AYA population.
  • The survey did not specify if a patient was treated at a pediatric or adult facility.

Overall 45.8% had a positive experience. Coming from 336 respondents.
Title of table: Percentage of AYA with cancer who had a specialized care plan pathway, Canada

Category Overall Age 15-29 Age 30-39 Female Male Other gender Remote Rural Urban
Number of respondents 336 124 212 162 165 9 12 91 233
Percent 45.8% 53.2% 41.5% 36.4% 53.9% 66.7% 33.3% 38.5% 49.4%

Data source: Young Adult Cancer Canada (YACC) Survey 2021

Topic: Improving transitions for adolescents and young adults with cancer
Title of image: Percentage of AYA with cancer who had a positive experience of transition in care along their cancer journey, Canada
Caveats/limitations:

  • Data were aggregated at the national level due to small sample sizes.
  • Other gender identity was selected by respondents who self-identified with a gender that was neither female nor male. Urban/rural was selected by respondents themselves (whether they considered themselves living in an urban or rural setting).
  • Only denominators are shown for each category (numerators are not explicitly shown on the graph).
  • Transitions were defined as changes in the patient’s disease and treatment (e.g., changing type of provider or location of treatment, moving from active treatment to surveillance) or other life events (e.g., moving back in with parents, losing a job or relationship).
  • Please note that recruitment for this survey did not target specific groups within the YACC’s community (e.g., by gender, location), but went to the community at large, which has a higher percentage of people identifying as female and living in an urban area. This means that the survey participants may not be representative of the general AYA population.
  • The survey did not specify if a patient was treated at a pediatric or adult facility.

Overall 45.5% had a positive experience. Coming from 336 respondents.
Title of table: Percentage of AYA with cancer who had a positive experience of transition in care along their cancer journey, Canada

Category Overall Age 15-29 Age 30-39 Female Male Other gender Remote Rural Urban
Number of respondents 336 124 212 162 165 9 12 91 233
Percent 45.5% 44.4% 46.2% 38.3% 52.7% 44.4% 58.3% 37.4% 48.1%

Data source: Young Adult Cancer Canada (YACC) Survey 2021